I have pxe i found out i had it when i was six yrs old and for the past yr ive been going every few months to make sure there is no more bleeding going on in my eyes.. I'm 21 and never thought that this would happen to me at 21 wondering how long my vision will last.. I have such a long life ahead and wanna find someone who has pxe that is close to where im from i want a pen pal plz if there is anyone out there...

i was pleased to see that people are starting to "get it" - - i.e., beat the greed and do it yourself attitudes ...the advocate for a more humane world is coming. watchout bloodhounds ! We commin back.

Mother Jones - Comments for "Who Owns My Disease?"